DAWN HEELS
Dawn Heels is a beacon of courage, resilience and empowerment. A multi-award-winning fibroid advocate and campaigner, Dawn has transformed her personal journey of overcoming 16 fibroids into a global mission to raise awareness, amplify voices and educate women battling this silent yet prevalent condition.
Following her life-changing open myomectomy in 2022, Dawn courageously shared her story through her groundbreaking series ‘My Fibroid Journey’ on Instagram and YouTube. Her raw honesty and unrelenting advocacy sparked a tidal wave of support and solidarity, connecting women across the globe who had silently struggled with fibroids. This powerful movement has since grown into a catalyst for change in women’s health conversations, breaking stigmas and offering hope.
Dawn’s work has earned her national and international recognition. Featured in esteemed publications like The Mirror, The i Newspaper, and The Voice Newspaper, she has also shared her expertise on Sky News and BBC 5 Live. Her insights have further resonated in influential spaces, contributing to The Guardian, health campaigns, and the award-winning ‘Just A Period’ initiative by Wellbeing of Women.
In 2023, Dawn’s tireless dedication to women’s health advocacy saw her host the UK leg of The White Dress Project’s Patient Empowerment Tour, marking her impactful presence on both sides of the Atlantic. She has since been celebrated as the Top Female Health Advocate 2023 by Female Health and Fertility and was honoured with the Community Champion award at the prestigious She Awards 2024—a testament to her unwavering commitment to driving change.
Beyond her advocacy, Dawn is a force for progress. As the founder of The Guidance Suite, a UN Women UK delegate for CSW 68, and an active member of the All-Party Parliamentary Group on Women’s Health and The Health Collective, her influence spans policy, education, and community empowerment.
Dawn Heels is more than an advocate—she is a trailblazer, a voice for the unheard, and a tireless champion for women’s health. Her journey reminds us that through adversity, purpose can emerge, and by sharing our stories, we can transform lives.
Huge congratulations, Dawn, on being named a We Are The City Rising Star Winner—an achievement that reflects the incredible impact of your work. Your story continues to inspire women everywhere to rise, reclaim their health, and stand in their power.
All information and links were correct at the date of original publication on
4 Dec 2024
Dawn, can you tell us a bit about your journey and what led you to become a passionate advocate for women’s health, especially regarding fibroids?
I’ve struggled with painful, heavy periods since I was 14. When I first raised my concerns with my doctor, I was told that this was typical for teenagers and would ease with age. Reassured, my mother and I left the appointment assuming what I was experiencing was normal. But as the symptoms worsened, we returned, only to be prescribed a pill that exacerbated my moods. After that, I managed the pain with ibuprofen, but life was challenging; every special occasion or holiday was clouded by the dread of my period’s unbearable pain, which no medication could relieve.
In my late teens, I discovered the progesterone-only pill, which stopped my periods entirely. My twenties became my “pain-free” years. I lived freely, unburdened by the symptoms I had endured. But by my thirties, hoping to have children, I came off the pill, and the agony returned. My periods were heavier and more painful than ever, despite my doctor’s assurances that it would lessen with time.
At 33, while working in a high-stress job, I noticed an unusual pain in my abdomen. Despite multiple visits to the doctor, who dismissed it as cycle-related, I persisted and eventually saw a female doctor. She suggested I might have a cyst and ordered a scan. The result? Two fibroids. My doctor assured me they were common and manageable with ibuprofen and a hot water bottle. For six years, I lived with worsening symptoms, becoming what I now call the “NHS definition of a fibroid sufferer.” The pain was overwhelming, affecting my entire body, from my legs and back to my abdomen and pelvis. My belly began to protrude, and I felt a hard lump—a terrifying discovery.
When I was ready to start a family, I found out that fibroids had made me infertile. Despite regular visits to my GP, no treatment plan was offered. After six years, I finally saw a specialist through private healthcare. This consultant was the first to truly listen, and he discovered at least six fibroids, including one the size of a grapefruit. He suggested an open myomectomy, understanding my hope to conceive. After a successful operation that to the removal of 16 fibroids, and a challenging recovery, I was blessed with a beautiful daughter in 2023.
Sharing my story on Instagram opened my eyes to how many other women were suffering in silence. My inbox filled with messages from women who had experienced similar struggles. This response inspired me to start “My Fibroid Journey” on Instagram Live, where I could amplify the voices of those who felt dismissed or unheard.
My advocacy focuses on bridging the gap between patients and medical professionals. Women deserve more than dismissive treatment or “worst-case scenario” options like hysterectomies. Through my work, I bring in experts to educate us on fibroid management and empower women to navigate the system effectively. I call myself the “accidental advocate” because I never intended to go beyond sharing my story. But witnessing how many women suffer without adequate support has made this journey my mission. I’m determined to see a change in how fibroids are addressed—acknowledging that while fibroids may be common, the pain and disruption they cause are anything but normal.
What challenges did you face in raising awareness about fibroids, and how have you overcome them?
One of the primary challenges I’ve faced is gaining respect and recognition from some medical professionals. As a patient advocate, I bring expertise through lived experience. I understand this condition firsthand, having researched, navigated the system, and connected with others to uncover every bit of information that might help. Yet, despite this deep personal knowledge, there can be a gap between medical professionals and advocates like myself, as some view our insights as less credible simply because we haven’t studied medicine formally. This dismissive attitude can be disheartening, as working together has repeatedly proven to create the best outcomes for those suffering. That’s why I’ve invited medical professionals onto “The Guidance Suite” and “My Fibroid Journey”—to bridge this gap and foster an environment of mutual respect and collaboration between patients and experts.
Another challenge is the lack of sufficient support from companies that claim to champion women’s health yet often overlook certain conditions, fibroids included. While conditions like endometriosis receive much-deserved attention, fibroids—which affect two in three women in the UK—are often sidelined. Despite being so common and frequently causing severe, life-disrupting symptoms, fibroids don’t always receive equal attention.
To overcome this, I strive to educate and encourage these companies to collaborate, demonstrating why it’s crucial to support all women’s health conditions inclusively. By genuinely backing all conditions, companies not only show commitment to the health of their audience but also enhance trust and loyalty within the communities they aim to serve. When women see that their struggles are acknowledged and addressed, they feel empowered, and in turn, they’re more likely to support brands that reflect those values.
 |  |  |
|---|---|---|
 |  |  |
If you don't like the position, size or placement of the photos, grab, move, rotate or resize them until you do!
Through "My Fibroid Journey" and The Guidance Suite, you’ve created a community where women feel supported and informed. What has been the most rewarding part of this work for you?
With My Fibroid Journey, the most rewarding aspect is amplifying the voices of women who have felt unheard for so long. This platform gives them the space to share their experiences freely, and through doing so, they often provide invaluable insights. Many women come thinking they’re simply sharing their story, but they end up educating others, offering practical advice and treatments that have worked for them. It’s incredible to witness viewers take away these “gems” of information, applying them to their own health journeys and advocating for themselves with their doctors. Often, the women who join to share their stories end up becoming advocates in their own right, spreading awareness and supporting others. Watching this transformation is truly inspiring.
With The Guidance Suite, the most fulfilling part has been building a genuine community where life-changing guidance is shared. The information we provide may not be new, but it’s often not widely known—like tips on accessing faster community gynaecology services in some areas of England, where women can be seen within weeks instead of waiting months. This kind of knowledge can be transformative for someone struggling without direction or support. And because we hold both online and in-person events, we see women returning to share their successes and insights. Many start as participants and later return to help others, creating a beautiful “pay-it-forward” cycle of support.
Both My Fibroid Journey and The Guidance Suite are spaces where women can go from feeling isolated and desperate to becoming empowered and informed advocates for their own health. It’s been deeply rewarding to witness women who came to us in despair, leave with confidence, equipped with the knowledge and support they need to navigate the system, advocate for themselves, and ultimately find relief. Seeing them come out the other side stronger is truly the greatest reward.
What advice would you give to women who are just starting to navigate their own fibroid or health journey?
First and foremost, educate yourself about the condition. Understanding fibroids—their causes, symptoms, and treatment options—will empower you in consultations with medical professionals. Many women approach these appointments without a clear understanding, which can sometimes lead them down a path that may not align with their personal goals. It’s vital to ask specific questions, like: How many fibroids do I have? Where are they located? How large are they? Having this knowledge can truly shape the direction of your journey. Knowing your end goal is essential too; for example, if you wish to have children, some treatment options may not be suitable for you. When you go in informed, it not only builds your confidence but often garners a more respectful, engaged response from the medical professionals.
Secondly, advocate for yourself. It’s a phrase we often hear, but it’s essential—this is your body, and you only get one. Be actively involved in decisions about your health. If you don’t agree with something or need clarification, speak up. A successful outcome should be a collaborative decision between you and your healthcare provider, considering all available options. Don’t hesitate to voice your concerns or ask questions—it’s your right, and it ensures that your needs are at the forefront.
Finally, if you’re unhappy with a consultation or feel dismissed, always seek a second opinion. This step has changed the lives of so many women. I’ve seen women who were initially advised to undergo life-altering procedures like hysterectomies find alternative solutions through a second opinion. Or others, initially told they had no options, were offered new treatments by a different consultant. It’s crucial to feel comfortable with both your treatment plan and the professional guiding you through it. So, if something doesn’t feel right, don’t hesitate—trust your instincts and find a healthcare provider who respects and supports your journey.
These are the foundational steps for women beginning their fibroid journey: educate yourself, advocate for your health, and always seek a second opinion if necessary.
How can companies be more inclusive in recognizing fibroids and supporting employees affected by this condition?
To be more inclusive, companies need to start by acknowledging that various gynaecological conditions, including fibroids, impact many women in the workplace. Unfortunately, there’s still a stigma around menstrual health that often prevents women from speaking up. Campaigns like Wellbeing of Women’s “Just a Period”, which I’ve supported on the fibroids front, are crucial in breaking down this taboo by emphasising that issues like heavy, painful periods are not something to simply endure—they’re serious and deserve attention.
One effective approach for companies is to raise awareness through education. Recognising initiatives like Fibroid Awareness Month in July, for example, and hosting events—such as online talks with speakers who can share their experiences—can make a significant difference. Recording these events so employees can watch at their convenience is also beneficial. These initiatives allow employees to understand the real impact of these conditions in a work setting.
Creating a more comfortable physical workspace is another essential step. For women who work in the office, sitting for extended periods can be challenging, especially around their periods. Offering flexible seating arrangements, such as softer furniture, and moving away from white office chairs, which can add to the stress for those with heavy periods, are small changes that make a big difference. Additionally, providing private spaces where employees can go for short breaks to manage symptoms, such as a space to rest or use a TENS machine, can make the workplace much more accommodating. Flexible work-from-home policies can also help—allowing women to manage severe symptoms privately without judgment.
Companies must also review their absence policies. Many women with fibroids may need to take time off for medical reasons, and it’s vital that this doesn’t lead to penalties. Unfortunately, I’ve heard from women who faced performance improvement plans or even dismissal due to frequent absences linked to severe fibroid symptoms. Employers need to recognise that conditions like fibroids can cause debilitating pain and should make reasonable adjustments rather than punishments for necessary time off.
Finally, having designated “menstrual health advocates” within the company could help. Not every employee will feel comfortable discussing personal health issues with their direct manager, so having approachable, knowledgeable individuals in place would allow employees to seek support without fear of judgment. These advocates could serve as a confidential resource, helping to communicate needs and ensure that adjustments are considered.
By taking these steps, companies not only support their employees’ well-being but also foster a more inclusive workplace culture that acknowledges and addresses real health challenges.
How can our readers support and engage with your work?
You can support and engage with my work by following my pages on Instagram (@dawn_heels and @guidancesuite), where I regularly share resources, guidance, and updates. I’m also available on LinkedIn (Dawn Heels), and I have videos on YouTube (Dawn Heels) that go into greater depth about my experiences, including preparing for and recovering from surgery. Your support means a lot in helping to raise awareness and empower women on their fibroid journeys.
Lastly, what’s next for you in your advocacy journey?
In 2025, my goal is to truly put fibroids on the map. While awareness is growing, we’re only scratching the surface, and there’s so much more to be done. This effort requires collaboration with people willing to give fibroids the platform they deserve. I want to be present—speaking widely about fibroids and sharing my experience—so that this condition is no longer sidelined.
I’m especially passionate about making Fibroid Awareness Month a well-known event here in the UK. The U.S. is making great strides with awareness, but here, we’re still lagging behind. I hope to see more companies engaging with advocates and medical professionals to amplify this month, ensuring it truly educates women and provides them with the knowledge they need to take control of their health.
Another priority for me is to push forward with fibroid research. It’s an area that remains severely under-researched—we don’t fully understand why fibroids develop, why they recur, or what treatments are most effective. Women are left to try different approaches without clear answers, and this needs to change. Advancing research into fibroids is high on my agenda for 2025, and I am determined to drive more attention and resources toward finding real solutions for women.